Tuesday, July 15, 2008

Update #6: Happy first week, baby?

Grandma & Grampa say goodbye to Bri before she goes in for surgery.

Bridgette is officially one week old. She's celebrating by having surgery. Her biopsy came back positive, so she's in right now having a colostomy. We're waiting for the call that says she is finished and OK. So far we've had one call to say they're still doing biopsies. She has been in for 1.5 hours, and they expected to be completely finished at that point. We don't know what is taking so long.

In case you are unfamiliar with the procedure, a colostomy includes doing multiple biopsies to see where the nerves end in her large intestine. These are the nerves that aid stricture and relaxation and help push food through her bowel. The section that doesn't function will be cut off or otherwise blocked and the good part will be pulled through an incision made in her tummy. A bag is attached to this piece of intestine and all her digested food will be emptied into the bag. She will wear this bag on the outside of her body for about 8 months, after which she will undergo another operation to attach the good intestine to her rectum. The most intensive follow-up care will last at least 3 to 4 years, although there may be some amount of care her entire life.

Mom and dad are pretty miserable today. Jeff got really sick last night and was vomiting, etc. We're hoping it was food poisoning, but just in case it is easily transmittable, both Kelly & Jeff have sequestered themselves in their hotel room down the street from the hospital.

There has never been a harder day to be away from our baby.

Grandma & Grampa Hoose are taking care of our little one and are calling us regularly with updates, but we feel particularly helpless as she goes through this procedure. We didn't even get to say goodbye to her. We didn't want to touch or kiss her because there could be no worse time for her to become ill with a tummy bug: pre, during, and post-surgery. We're pretty depressed and despondent right now.

Grandma said that Grampa Hoose gave Bri another blessing before surgery, and they both feel sad for the situation but very positive. It's amazing how much I am relying on my parents' feelings of hope in these early days of my own parenthood - today especially. I'm very grateful they are here.

Bri got two more meals before she went with the infant anesthesiology team. She seems to have a much easier time with a bottle because she has spent the last week being pacified with a pacifier that is shaped exactly like a bottle's nipple. I hope someday we can move back to breastfeeding.

She also pooped one more time on her own, so it may be that not much of her colon is affected by Hirschsprung's - and the less the better.

Thank you again for all your phone calls, blog comments, emails, thoughtful gifts, offers to help, prayers, and compassion. We ask for your continued prayers for baby Bri.

6 comments:

Rosemary T said...

Been thinking of you lots! My prayers are with you. My mom had this procedure done a few years ago. I can't imagine how you must feel as a new parent.
Are you staying at the University Guest house? That is where my sister stayed while her son was in PCMC for his brain tumor.
Take care,
Rosemary

Heidi said...

Here is a link that explains HD well:
http://digestive.niddk.nih.gov/ddiseases/pubs/hirschsprungs_ez/

Mary said...

OH Kelly and Jeff! I wish I could do something for you. We are praying for you and your precious baby. We love you all and hope Bri will heal fast so you can bring her home soon.

Mary and family

Sarah said...

Kelly and Jeff - I am praying and thinking about you all. I wish I give you all a big hug. I'm so sorry you are both sick and unable to go to the hospital today. I love you all so much. The girls love looking at beautiful baby Bridgette. Thanks for doing this blog. What a great way to feel like we are there. Love you!

Miss Summerson said...

Kelly, I just saw on facebook that you had a blog. You and your family will be in my prayers. I am so sorry that you are having to experience this situation. My heart is just aching for you. Your baby girl is so beautiful.

Are you in SLC at PCMC? I work at the Moran Eye Center right next to PCMC. We are moving on Friday but if you are in SLC, I would love to walk over to PCMC and see you. I hope everything turns out okay. Please let me know if I can do anything for you! (this is Aria)

Chelsea said...

Sophie had the same trouble breastfeeding when she was taken off TNP. (I know, our situations are not particularly comparable. This post is with love, not arrogance.) We used a nipple shield to help her transition from plastic to the breast. I'm hopeful that your little maiden warrior will be able to try that soon. We're still praying. You can do this.