Thursday, August 7, 2008

Check-up

This is our cute baby. We like her.



Bri had her post-surgery check-up yesterday at PCMC. Ma Johnson helped me take her back up to Salt Lake City. Dr. Black looked her over and said she's doing fine. We talked about the time frame for her ileum take-down (he suggested it could happen as early as the first few months of next year, but the real determining factor will be her weight-gain/size), and he drew diagrams of the procedure for me all over the paper on the exam table.

He also drew a picture of her abdomen, diagramming her future scars, once they've healed. There will be one long scar going through her belly button from her pelvic bone to her sternum, and one short horizontal scar to the right of it, where her stoma is now. The stoma hole will not require a skin graft. Dr. Black will just pull the skin taut over the hole and stitch it up. So, in actuality, her scars will look just like they do now! Only, instead of a stoma, she will have none.

We discussed the issue of future diaper rash. That horrible bile-y acid that is a part of her stool (and causes her stomach skin to breakdown and bleed almost immediately) will be sitting on her bum after the take-down. Dr. Black said that there is almost nothing we can do, and she'll simply have irascible skin until it hardens to the effects. He suggested smathering Desetin on her bum in a thick layer, like icing on a cake, every time we change her... to lessen the pain as much as possible. And once again we sigh, "Poor baby." But, we'll handle that when it comes - best not to dwell on it now.


Bri's new wafer has adhered to her skin without leaks for 36 hours now. I'm nervous that it will spout a leak while Jeff is gone at work. Then I have to decide if it is bad enough to risk trying to change it by myself, having it not seal properly and thus leak again sooner, OR if it's worth risking a little stool sitting on her during the day in order to have two sets of hands to fix her up once Jeff is home.

We have discovered that four hands are really quite necessary for a successful wafer change. One person does most of the work while the other person pins Bridgette's hands and succors her with sugar water - a sweet treat to counter the pain and discomfort. We've also discovered that Bridgette is most cooperative if we split her feeding schedule down either side of a wafer change. She gets half her meal before, so she isn't cranky with hunger on top of all else, and half after, so she is additionally soothed post-trauma.

At some point, I assume I will post a blog entry that has nothing to do with Hirschsprung's repercussions and more to do with some amazing cognitive or physical development in Bri, or some fantastic date that Jeff & I go on. Until then, it continues to consume a lot of our time and thoughts.

Here are two pics I just received from Grandma's flash drive of the Hoose's saying goodbye to Bridgette on Monday. We look forward to their next visit, be that when it may.

4 comments:

Anonymous said...

Thanks for posting this blog. We miss you all and look forward to future updates.

Love you.
Mom and Dad

Anonymous said...

Oh, yes, Kelly, I want some of these pictures!

Love ya,
Mom

JulieAnn said...

What a cutie! She is beautiful. We're glad things are going better.

Chelsea said...

Kelly, I am REALLY close by and totally willing to come over at a moment's notice to help with a wafer-change (or anything else). And here's what I've learned about diaper creams: Balmex helps soothe redness the quickest, but is the worst barrier. Desitin is a great barrier. I've found a new cream, the name of which I've forgotten and I can't find the box I packed it in, but it's the same brand as the nipple cream I gave you. Max got little blisters from the chafing of a cheap diaper and that brand seemed to be the best barrier of all. I know you can buy that brand at Babies R Us.