We order everything from a company called EdgePark. Here are the supply numbers: Hollister Bag: 3778, Convatec Wafer: 411642, BD 60ml Syringe Luer-Lok Tip, REF 309653 (to get stool out of the bag).
Seven important things we've learned:
4) We put a hair dryer on hot and aim it towards the wafer while we do the next step. The wafer must be heated to be pliable and mold properly to her skin. Leaning the wafer up against a book or wall often helps.
5) While the hair dryer blows, we clean Bridgette's skin with a moist gauze pad, no soap. Baby soaps have glycerin and prevent the wafer from sticking.
6) Once Bridgette's skin is clean, we pat it down with a dry gauze pad.
7) When her skin is dry, we take the hair dryer, switch it to 'cool' and then dry her stoma area thoroughly for one to two minutes.
8) Once we are satisfied, we turn the hair dryer back on hot and let it continue to blow on and heat the wafer while we do the next step.
9) We place stoma powder on any problem areas on Bridgette's skin. The acid in her stool eats away at her skin, and the powder absorbs some of the ooze and helps her skin heal.
10) We remove the hair dryer and put stoma paste around the inside edge of the hole on the sticky side of the wafer (the part that will go against her skin).
We usually give Bridgette a sponge bath at this point which can be done in less than five minutes. The water-proof tape helps make sure that the wafer does not get wet.
It used to take my wife and me 45 minutes to an hour to do a bag change and bath, and we burned through supplies - sometimes 5 to 10 changes a day. Now we can do a change in 10 to 15 minutes and a bath in less than 5 minutes. If Bridgette releases stool while we are changing her, it takes a little longer, but bags usually last 3 days.
*** Now that she is six months old and eating solid foods, we are using larger wafers and bigger bags with a gas vent. We are consistently getting bags to stay on for three days without leaks. ***
I hope this guide helps anyone who is frustrated with leaky bags and wafers for ileostomies. If you are struggling with a similar situation, feel free to contact us!