Monday, March 1, 2010

A Great High Weirdness

So, we're headed back to the hospital... yet again!

Trying PCMC's "sister" hospital in Riverton that claims less traffic (probably true) and faster in-&-out times (yet to be seen). Baby's stool labs all came back negative (a good thing), but she's still very distended and not passing any poop or urine or gas on her own (a very bad thing).

We'd really like answers! Sadly, I was on the phone all day today trying to set up follow-up appointments with doctors who are too busy to call us back. At least they said as much on their voicemail messages.

So in the meantime, we'll take some more I.V. fluids to prevent severe dehydration.

She's somewhat active and happy today, though I can tell her tummy is sensitive. She's drinking minimally and not vomiting. That's good. But she's also not eating. That's bad. She's definitely losing weight again. It's fortunate she had all those delectable rolls of fat on her arms and legs because I think they are now staving off starvation. Her skin is hanging off wrinkly-like where her fat deposits are rapidly disappearing. Think blue whale migration.

Update(s) later! Wish us a nice FHE (Family Hospital Evening)!


Heidi said...

Good luck!

Kelly said...

Give Bridgette a hug from us. We will send lots of prayers and happy thoughts your way! Please let us know if we can do anything to help.

Kel said...

We're back home at about 11 p.m. Only a four hour adventure this time... definite improvement. We took two more X-rays that show no progress (ileum still distended and not functioning) but also no change for the worse (no apparent blockage). Essentially, no one knows what's going on.

She got her bolus of fluid and she peed within half an hour after a previous 36 hours of nothing. Oddly, her hematocrit looked normal, even before receiving the fluid. Her body must be a pro at conserving what little fluid she gets. She's like a human cactus.

So while we wait to get appointments with her surgeon in clinic, her pediatrician, and the Ped G.I. team looking for answers, we are in a holding pattern. Imagine the plane going up, up, up in hydration, then plummeting into dehydration, while we scramble to respond appropriately by taking her to the E.R. before we hit the bottom of the trough. Still trying to work out a system whereby we can get hydrated faster and, preferably, at home.

Joy said...

Glad to hear that you are at least back home. Hope The Riverton hopital was helpful, if not let me know my brother is the administer there.

Jacqueline Miller said...

Hang in there, Kelly! (Sending you a not on Facebook.)

123 checkoutourfamily said...

oh I'm hoping everything gets figured out quickly. It's no fun not having answers. Sorry about all that.

Keep us updated and know there are prayers on your behalf.